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June 2025

EMEA Lithuania Discussion in Vilnius

EMEA Lithuania discussion on the longstanding neglect of people with severe disability due to myalgic encephalomyelitis in Lithuania
June 2025

EMEA Participates in EDF Annual Meeting, Vilnius

EMEA is a member of the European Disability Forum (EDF) and recently took part in the EDF Annual Meeting in Vilnius, Lithuania, on 21–22 June 2025. EMEA joined discussions with key disability rights stakeholders and continued its work to highlight the situation of people with ME in Europe.
June 2025

Dutch Television and Radio Highlight ME

EMEA Netherlands ME Awareness - media pay special attention to the problems experienced by children with ME in the health care system.
May 2025

EMEA Joins EPF

EMEA becomes a full member of the European Patients' Forum
May 2025

International ME Awareness Month

On International ME AwarenessDay EMEA urges EU to work with EMEA and initiate a pan-European effort to resolve decades of issues with research/treatment of ME
May 2025

Cochrane Exercise Review for ME

This article draws on EMEA’s direct experience as a member of the Cochrane IAG
January 2025

Spanish online course for professionals

EMEA Spain member, CONFESQ, will be launching a course in January specifically focused on Myalgic Encephalomyelitis.
January 2025

EMEA Slovenia Activities in 2024

A video (in Slovenian) regarding the activities of EMEA Slovenia during 2024
December 2024

Serbian Conference links

More on the recent Serbian conference on ME and long covid - with links
December 2024

International Day of Persons with Disabilities

International Day of Persons with Disabilities (IDPD) is a UN day that is celebrated every year on 3 December.
December 2024

Sture Eriksson

Sad news of EMEA board member Sture Eriksson
November 2024

Young EMERG Reflections on WHO Visit

A new milestone: Young EMERG/EMEA joined the Youth4Health initiative
November 2024

EMEA Presents at European Parliament Meeting

European Parliament Meeting of the MEP Interest Group on Brain Health and Neurological Conditions
November 2024

EMEA Presentation for Lithuanian Conference

EMEA Presentation for EMEA Lithuania Conference on 11 November 2024
November 2024

Austrian Research Study

An opportunity for individuals affected by ME/CFS, Post-COVID, and other conditions triggered by infections to participate in a research study.
November 2024

Overview of European ME Alliance Activities at WHO Regional Congress #RC74CPH in Copenhagen

All of the statements made by EMEA at the #RC74 congress, along with EMEA videos submitted, and links to the WHO Europe's own congress page'
November 2024

New Full EMEA Member

EMEA welcomes our latest Spanish member into the alliance
November 2024

Overview of European ME Alliance Activities at WHO Regional Congress #RC74CPH in Copenhagen

All of the statements made by EMEA at the #RC74 congress, along with EMEA videos submitted, and links to the WHO Europe's own congress page'
October 2024

European ME Alliance Statement at the Day 3 of #RC74CPH meeting

The last EMEA statement to be read at 74th Regional Committee Meeting for Europe on the agenda item 12 Harnessing innovation for public health in the WHO European Region 2025–2030: preparing for a new strategy
October 2024

European ME Alliance Statement at the Day 3 of #RC74CPH meeting

EMEA statement at 74th Regional Committee Meeting for Europe on the agenda item Framework for resilient and sustainable health systems in the WHO European Region 2025–2030
October 2024

European ME Alliance Statement at the Day 2 of #RC74CPH meeting

EMEA statement at 74th Regional Committee Meeting for Europe on the agenda item European regional action framework for behavioural and cultural insights for equitable health, 2022–2027
October 2024

EMEA Representative for WHO Europe Youth4Health Initiative

Johanna Rohrhofer from EMERG member Dr Eva Untersmayr's group in Vienna will be EMEA's representative
October 2024

European ME Alliance Statement at the #RC74CPH meeting

EMEA statement at 74th Regional Committee Meeting for Europe on the agenda item discussing the State of Health in the WHO European Region
October 2024

EMEA Presents at World Health Organisation Europe Congress

EMEA will be presenting at the session and issuing statements concerning ME at the congress which is being held in Copenhagen, Denmark.
September 2024

EMEA Presentation for Lithuanian Conference in June 2024

The European ME Alliance was invited by the Chair of the Lithuanian Parliamentary Commission for the Rights of People with Disabilities and the EMEA Lithuania Member Association ‘Independent Living’ to present at the Lithuanian Conference
June 2024

WHO-Europe Support for International ME Conference Week and ME

WHO Europe provide a supporting video for people with ME and for delegates to the International ME Conference Week events in UK in June.
May 2024

EMEA Writes to EU MEP Candidates

With the upcoming EU elections in June 2024 EMEA has written to all MEP candidates asking for support for ME and for EMEA initiatives.
May 2024

EMEA Video of members' activities

We thought that a short video on some of the members' activities might be useful to share
April 2024

Findings from the EMEA Pan-European ME Survey - Press Release

On World Health day 2024, the long-awaited findings of the European ME Alliance Pan-European ME Patient Survey, initiated in 2021, have finally been unveiled, painting a distressing picture of neglect and suffering endured by millions across Europe.
March 2024

EFNA EU Election Manifesto

EMEA are a member (and board members) of European Network of Neurological Associations (EFNA).
Between 6 and 9 June 2024, millions of people in the European Union vote for Members to represent them in the European Parliament.
EFNA has produced a manifesto for the elections.
Oct 2023

EMEA Receives Official Accreditation Status with WHO Europe

The European ME Alliance (EMEA) is proud to announce that it has received ‘official Non-State Actor accreditation’ status from WHO’s Regional Office for Europe during WHO Europe’s 73rd Regional Committee Meeting (RC73 that took place in Astana, Kazakhstan from 24-26 October 2023 .
Sep 2023

EMERG - More New Members - and EU Research Application

New members of EMERG are announced and an update on the EMERG application for EU Horizon funding for research into high burden, under-researched diseases - ME
Sep 2023

EMEA signs open letter to the UN on health equity for people with disabilities

The European ME Alliance, together with over 60 other organizations, has co-signed a statement to the United Nations urging its 193 Member States to implement specific actions on achieving health equity for persons with disabilities and older people
July 2023

Diabetes Mellitus prevalence in ME/CFS Patients

A survey for people with ME conducted by Spanish researchers in EMERG.
March 2023

Young EMERG group forms with a meeting in June

The European ME Research Group has formed Young EMERG - EMERGecr - a network of young or early career researchers for ME. A meeting will be held on 2 June in Cambridge, UK, with international delegates.
March 2023

EMERG Pre-Colloquium Research Workshop - with New Members

A full EMERG meeting will take place prior to the 12th Invest in ME Research Biomedical Research into ME Colloquium at the Wellcome Genome Campus in UK in May. New participants will join the meeting.
May 2022

EMEA videos from our Balkans webinar

The videos from this year's ME/CFS in the Balkans webinar are available.
December 2022

Launch of the WHO Global Report on Health Equity for Persons with Disabilities

HO Global Report on Health Equity
September 2022

EMEA Iceland Video

One can now watch a new video from EMEA Iceland - new Icelandic educational film about ME on vimeo. The film has Danish, English and Polish subtitles in addition to Icelandic subtitles so that it is also possible to use automatic text translation. The Icelandic name of the film means: The ME disease - exhaustion out on the edge, and refers to the fact that ME patients are marginalised in the health system and in the whole society.
June 2022

Videos from the second Roundtable of European Stakeholders and Policymakers

The videos from April's roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe are available.
May 2022

Dutch Research into ME

Research in the Netherlands - an update.
May 2022

ME Awareness video from Slovenian, Serbian and Croatian associations

The Slovenian, Serbian and Croatian associations for ME/CFS and fibromyalgia have made a video about life with these diseases.
People from the Balkans region are talking about how they feel and what they wish.
It is a home made video but it is published with English subtitles.
May 2022

ME and post covid in the Balkans

EMEA is arranging the next multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe. This webinar will be - ME and post covid in the Balkans.
April 2022

ME/CFS in the Nordic Countries

ME/CFS in the Nordic Countries - a report from EMEA Nordic network. The report was produced based on last year’s EMEA Nordic network’s mini-survey and online meeting, arranged by EMEA Finland, the Medical Association of ME/CFS in Finland.
The report maps health care and research in the Nordic region.
April 2022

Agenda for the second Roundtable of European Stakeholders and Policymakers

EMEA is arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe.
January 2022

Long COVID could become Finland's largest chronic disease

The Finnish institute of health and welfare considers an illness chronic when it has a major impact on public health and the national economy through lowered working capacity and strains on healthcare.
December 2021

International Day of Persons with disabilities WHO Disability Day

International Day of Persons with Disabilities (IDPD) is a UN day that is celebrated every year on 3 December.
November 2021

German Petition November 2021

Our German colleagues have informed us that there is currently a petition running in the German parliament for better research, healthcare and acknowledgement of ME/CFS.
October 2021

Brain and health higher on the agenda in the Netherlands

EMEA Netherlands - The ME/CFS Foundation - is one of the signatories to this manifesto and the Queen of the Netherlands opened the launch of the project.
October 2021

UK NICE guidelines

The NICE guidelines development process has been paused and EMEA UK member has described the current situations since August 2021 as a debacle.
Read more on this
Sept. 2021

New Video from EMEA Iceland

A new video, Living with ME, from ME félag Íslands.
It has subtitles in English and Icelandic
August 2021

New Full EMEA Member

Slovenia is the latest country to be represented in EMEA.
August 2021

New Full EMEA Member

Latest Dutch group to join EMEA
August 2021

The video from the recent EMEA/EFNA Webinar Roundtable - ME/CFS in Europe - is now available

EMEA has published the video of our recent webinar roundtable meeting with all presentations from the event.
August 2021

EMEA FINLAND -Chronic Fatigue Syndrome (ME / CFS) patient case

An updated version of the Presentation given to Nordic Medical Days by EMEA Finland chairman Samuli Tani.
June 2021

New members of EMERG

The European ME Research Group (EMERG) has added new members to the team - from Norway, Serbia and Germany.
June 2021

The Realities of ME - Anne Örtegren

From the 1st EFNA/EMEA European Roundtable for Stakeholders and Policymakers webinar - The Realities of ME
Last Post from Anne Örtegren
Warning - content may be upsetting for some
June 2021

Agenda for the First Roundtable of European Stakeholders and Policymakers

EMEA and EFNA are arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe.
May 2021

Announcing the EMEA PAN-EUROPEAN SURVEY

We invite European people with ME to take the EMEA pan-European ME survey - the first of its kind comparing the situation and experiences of ME-patients across European countries.
May 2021

ME Awareness

Some of the activities from EMEA members leading up to ME Awareness Day
April 2021

New Documents from USA Clinicians' Coalition

Recommendations for medical providers for ME/CFS testing and for treatments
April 2021

EMEA Switzerland petition

EMEA Switzerland has launched a petition for a national strategy
March 2021

A Roundtable of European Stakeholders and Policymakers

EMEA and EFNA are arranging a multi-stakeholder, roundtable meeting on Myalgic Encephalomyelitis (ME/CFS) in Europe.
March 2021

New Full EMEA Member

Serbia now represented as the latest full member of EMEA.
March 2021

A New Beginning for Dutch Research into ME?

Research in the Netherlands - an update and a decision!
March 2021

EFNA One Neurology Campaign

EFNA has launched the One Neurology campaign during #BrainAwarenessWeek - supported by EMEA
March 2021

EMEA FINLAND ME patient case

Presentation given to Nordic Medical Days
February 2021

Finnish Guidelines

New Finnish guidelines published
Norway: 2020 Care Service for Severely Ill

December, 2020

A new care service centre is to be opened in Norway for severely-affected ME patients.

by EMEA Norway NMEF

SPAIN: 2020 Press Release

October, 2020

A press release issued by EMEA SPAIN member CONFESQ.

by CONFESQ

SWEDEN: 2020 Conference event in Sweden

October, 2020

A virtual conference from Sweden is being organised by EMEA-SWEDEN RME.

by RME
October 2020

Something Changing in the State of Denmark?

EMECC member Jesper Mehlsen and his treatment of a severely affected ME patient in Denmark
October 2020

New Full EMEA Member

Dutch group becomes the latest full member of EMEA.
October 2020

New EFNA Art Competition

A chance to win up to €500 for the winner.
October 2020

New Full EMEA Member

Spanish group becomes latest full member of EMEA.
September 2020

New Full EMEA Member

Dutch group becomes latest full member of EMEA.
September 2020

New Full EMEA Member

Croatian group becomes latest full member of EMEA.
August 2020

New Full EMEA Member

Finnish group becomes latest full member of EMEA.
July 2020

EFNA Survey Released

The European Federation of Neurological Associations releases its survey on Stigma and Neurological Disorders
June 2020

EMEA AGM

The European ME Alliance Annual General Meeting will be in August
June 2020

EMEA Funding for EMERG

New initiative to Support the Work of European ME Research Group Researchers
June 2020

Open Letter to European Commissioner for Health and Food Safety

from European Federation of Neurological Associations and the European Academy of Neurology

August 2019

EMEA Presentation - What We Do

A presentation made for recent conferences in Germany and Norway describing some of the work being performed by European ME Alliance and its members.
July 2019

EMEA Wins #BrainLifeGoals Award

Aspirations of Hope
an award to the European ME Alliance to raise awareness of the impact of neurological disorders
July 2019

EMEA Norway Publishes Survey on Severely Ill Patients

WHEN THE NEED IS GREATEST, HELP IS ALMOST GONE
Norway's ME association has made a 186 page report about the most serious ME sufferers.
June 2019

APPG for ME set up in Finland

EMEA Finland member Suomen lääketieteellinen ME/CFS-yhdistys ry has helped form a parliamentary group for ME in Finland.
May 2019

EMEA UK: Conference Week events in London

Invest in ME Research held its annual ME Conference Week in London in May 2019. Apart from the annual research Colloquium and public Conference there was also another Thinking the Future conference for young and early career researchers.
September 2017

Letter to Finland's Valvira - CBT and GET

Finland’s Valvira removes recommendation for use of CBT and GET
March 2017

Breakfast in Brussels

EMEA Organises Meeting in EU Parliament on Myalgic Encephalomyelitis
December 2016

EMEA Letter to WHO Regarding ICD-11

The Disappearance, Continued Absence and Its Consequences of the Enforcement of the ICD-10 G93.3 Within the Linearization of the ICD-11 Public Beta Draft Version
November 2016

EMEA Letter to Members of the Funktionelle Lidelser Working Group

EMEA Writes to Members of the Danish Funktionelle Lidelser Working Group
June 2016

EMEA Response to NIH RFI

European ME Alliance Response to RFI Notice Number: NOT-NS-16-024 Request for Information: Soliciting Input for New Research Strategies for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME)
March 2016

EMEA WRITE TO QMUL

EUROPEAN ME ALLIANCE REQUESTS RELEASE of PACE TRIAL DATA FOR INDEPENDENT REVIEW
March 2016

NMEF EXPRESS CONCERN ON COMPETENCE CENTRE SEMINAR

EMEA Norway expresses concern over the content of a Seminar on the Sickest Organized by Norwegian Knowledge Centre
February 2014

EMEA UK writes to Danish Health Minister regarding the case of Karina Hansen

Invest in ME Writes to Danish Health Minister
October 2015

EMERG - European ME Research Group Meets in London in October

A Future for European Research into Myalgic Encephalomyelitis
June 2015

Press Release: EMEA Joins EFNA

EMEA PRESS RELEASE - For Immediate Release 21 June 2015 - European ME Alliance Joins European Federation of Neurological Associations
March 2015

Rights and benefits the EU brings to patients. A document for patients in the EU now available.

Rights and benefits the EU brings to patients
October 2012

EMEA petition to the European Parliament

The members of the European ME Alliance have put forward a petition to the European Parliament in Brussels. EMEA feel there is an urgent requirement to address the perception, treatment and research into myalgic encephalomyelitis.
June 2012

EMEA DSM-V Submission

Submission to DSM-5 Draft Proposals Submission – to the American Psychiatric Association on DSM-5 Somatic Symptom Disorders Category
March 2012

Falling back to the Dark Ages

EMEA’s statement concerning the new German guideline on “tiredness”
November 2012

INVITATION from the DANISH INSTITUTE for HUMAN RIGHTS to EMEA DANSK ME FORENING

Invitation from the Danish Insitute for Human Rights to Dansk ME Forening to participate in panel discussions regarding how well and effectively the UN Disability Convention has been implemented in Denmark
October 2011

EMEA Press Release on Ground-breaking research from Norway.

European ME Alliance welcomes ground-breaking research from Norway
August 2011

EMEA respond to UK newspaper The Times regarding their ME articles

The European ME Alliance has written to The Times newspaper complaining about the recent article which allowed Professor Simon Wessely's views on ME to be publicised with little real analysis or objective comment. EMEA have written to the Times - the letter is below.
June 2011

Press Release from the Norwegian Directorate of Health

Norwegian Directorate of Health has published views of reports from The Foundation for Scientific and Industrial Research at the Norwegian Institute of Technology (SINTEF Technology and Society) and Norwegian Knowledge Centre for the Health Services regarding current scientific evidence based knowledge status on ME.
June 2011

EMEA Press Release on Ground-breaking research from Norway.

The European ME Alliance welcomes the research by Fluge, Mella et al published on 19th October 2011 in Plos One.
June 2011

Reaction to the UK PACE Trials

The European ME Alliance members' comments on PACE
2010 December EMEA write to European health ministers calling for a Europe-wide ban on blood donations from people diagnosed with ME/

European ME Alliance Renew Call for Total Europe-Wide Ban on Blood Donation from People Diagnosed With ME/CFS
2008 November European ME Alliance Press Release

The European ME Alliance is a collaboration of ME organisations within Europe who have the common aim of promoting biomedical research into Myalgic Encephalomyelitis (known as ME or ME/CFS) and increasing awareness of this debilitating neurological illness.
EMEA is formed

Nov 2008

EMEA is formed

by EMEA

OUR PARTNERS

Member of European Federation of Neurological Associations

Member of European Disability Forum

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NEWS

EMEA Lithuania Discussion in Vilnius

EMEA Participates in EDF Annual Meeting, Vilnius

Dutch Television and Radio Highlight ME

EMEA Joins EPF

International ME Awareness Month

Cochrane Exercise Review for ME

Spanish online course for professionals

EMEA Slovenia Activities in 2024

Serbian Conference links

International Day of Persons with Disabilities

Sture Eriksson

Young EMERG Reflections on WHO Visit

EMEA Presents at European Parliament Meeting

EMEA Presentation for Lithuanian Conference

Austrian Research Study

Overview of European ME Alliance Activities at WHO Regional Congress #RC74CPH in Copenhagen

New Full EMEA Member

Overview of European ME Alliance Activities at WHO Regional Congress #RC74CPH in Copenhagen

European ME Alliance Statement at the Day 3 of #RC74CPH meeting

European ME Alliance Statement at the Day 3 of #RC74CPH meeting

European ME Alliance Statement at the Day 2 of #RC74CPH meeting

EMEA Representative for WHO Europe Youth4Health Initiative

European ME Alliance Statement at the #RC74CPH meeting

EMEA Presents at World Health Organisation Europe Congress

EMEA Presentation for Lithuanian Conference in June 2024

WHO-Europe Support for International ME Conference Week and ME

EMEA Writes to EU MEP Candidates

EMEA Video of members' activities

Findings from the EMEA Pan-European ME Survey - Press Release

EFNA EU Election Manifesto

EMEA Receives Official Accreditation Status with WHO Europe

EMERG - More New Members - and EU Research Application

EMEA signs open letter to the UN on health equity for people with disabilities

Diabetes Mellitus prevalence in ME/CFS Patients

Young EMERG group forms with a meeting in June

EMERG Pre-Colloquium Research Workshop - with New Members

EMEA videos from our Balkans webinar

Launch of the WHO Global Report on Health Equity for Persons with Disabilities

EMEA Iceland Video

Videos from the second Roundtable of European Stakeholders and Policymakers

Dutch Research into ME

ME Awareness video from Slovenian, Serbian and Croatian associations

ME and post covid in the Balkans

ME/CFS in the Nordic Countries

Agenda for the second Roundtable of European Stakeholders and Policymakers

Long COVID could become Finland's largest chronic disease

International Day of Persons with disabilities WHO Disability Day

German Petition November 2021

Brain and health higher on the agenda in the Netherlands

UK NICE guidelines

New Video from EMEA Iceland

New Full EMEA Member

New Full EMEA Member

The video from the recent EMEA/EFNA Webinar Roundtable - ME/CFS in Europe - is now available

EMEA FINLAND -Chronic Fatigue Syndrome (ME / CFS) patient case

New members of EMERG

The Realities of ME - Anne Örtegren

Agenda for the First Roundtable of European Stakeholders and Policymakers

Announcing the EMEA PAN-EUROPEAN SURVEY

ME Awareness

New Documents from USA Clinicians' Coalition

EMEA Switzerland petition

A Roundtable of European Stakeholders and Policymakers

New Full EMEA Member

A New Beginning for Dutch Research into ME?

EFNA One Neurology Campaign

EMEA FINLAND ME patient case

Finnish Guidelines

Norway: 2020 Care Service for Severely Ill

SPAIN: 2020 Press Release

SWEDEN: 2020 Conference event in Sweden

Something Changing in the State of Denmark?

New Full EMEA Member

New EFNA Art Competition

New Full EMEA Member

New Full EMEA Member

New Full EMEA Member

New Full EMEA Member

EFNA Survey Released