March 2016 The European ME Alliance (EMEA) has written to Queen Mary University London (QMUL)
requesting that data from the PACE Trial is released for independent review.
The European ME Alliance is a collaboration of 15 ME organisations in
13 European countries who have the common aim of promoting biomedical research into Myalgic
Encephalomyelitis (known as ME or ME/CFS) and increasing awareness of this debilitating neurological illness.
The refusal to release data goes against the current climate of openness
and reflects poorly on any academic institution.
The failure to release this data also continues to do harm to patients across Europe
where healthcare systems may base their policies on what is perceived by EMEA as quite flawed research.
The letter to QMUL is in the attachment above.
Further Information:
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Last Update: 11 March 2016 |