EMEA Organises Meeting in EU Parliament on Myalgic Encephalomyelitis (ME)


January 2017


EMEA: PRESS RELEASE - For Immediate Release

The European ME Alliance is a collaboration of 13 Myalgic Encephalomyelitis (ME) organisations in European countries who have the common aim of promoting biomedical research into Myalgic Encephalomyelitis and increasing awareness of this debilitating neurological disease.

Following months of planning EMEA is arranging a high-level meeting in the European Parliament on 7th March 2017.

The meeting will cover different topics that Members of the European Parliament ought to be aware of - including creating awareness on the quality of life and disability regarding people with ME.

An agenda has been created by EMEA in cooperation with Mrs Helga Stevens MEP.

The meeting will be held with breakfast and it is hoped that EMEA can begin the process of adjusting the perception, treatment and funding of research for myalgic encephalomyelitis within the political environment in the EU.

The line-up of speakers includes Dr Ian Gibson (UK), Dr Olli Polo (Finland), Dr Anne-Marie Uyttersprot (Belgium), Nancy Van Hoylandt (EMEA Belgium), Dr Louise Brinth (Denmark), MEP László Lovász (Hungary - UN Convention on Rights of persons with Disabilities), and Dr Nigel Speight (UK).

Other researchers from Europe will be present and supplementing the discussions - to be announced.

The meeting follows intensive work by EMEA members recently within Europe - having opened discussions with the WHO on ICD-11 and writing to the Danish Members of the Funktionelle Lidelser Working Group (click here).

More details will follow.






 

Last Update: January 2017


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