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Who We Are

European ME Alliance

About EMEA

The European ME Alliance (EMEA) is a grouping of European organisations dedicated to supporting patients suffering from Myalgic Encephalomyelitis (ME, sometimes referred to as ME/CFS).

Founded in 2008 by national patient organisations and charities across Europe, the alliance is committed to improving the lives of those affected by ME. This debilitating neurological illness is classified by the World Health Organisation under ICD-11 Code: 8E49.

Our vision is to ensure that all patients have access to accurate diagnosis, compassionate care, and effective treatment, recognising ME as a serious, chronic illness.

Objectives

We aim to: -

Advocate for Patients' Rights: Collaborate with policy makers and healthcare providers to influence policies that improve the quality of life for ME patients.
Advance Scientific Research: Support and facilitate a strategic approach to high-quality, collaborative biomedical research aimed at deepening understanding of ME, identifying biomarkers, and developing effective treatments.
Supporting Research: Bring together researchers and clinicians across Europe to work with EMEA in advancing research, ethical advocacy, and best practices. Our goal is to establish a comprehensive understanding of the aetiology, pathogenesis, and epidemiology of the disease, ultimately leading to the development of treatments that can cure or alleviate the effects of the illness.
Raise Awareness: Increase public and professional understanding of ME to reduce stigma and misconceptions about the illness.
Ensure Access to Support: Provide resources and guidance to patients and families to help them navigate the challenges of living with ME.