Croatian Association for Patients with ME/CFS, Dysautonomia and Fibromyalgia – Croatia

The Croatian Association for Patients with Myalgic Encephalomyelitis, Dysautonomia and Fibromyalgia is a non-profit organisation dedicated to raising awareness about these chronic and often misunderstood conditions.
Its mission is to support patients and their families, promote education and understanding among the public and healthcare professionals, advocate for better recognition and care, and encourage scientific research.

Focus Areas

The organisation’s work centres on:

• Patient advocacy
• Patient and family support
• Awareness campaigns
• Medical education
• Research collaboration

Working Together at European Level

The association collaborates with the European ME Alliance through advocacy efforts, sharing information and resources, participating in joint awareness initiatives, and supporting European efforts to improve recognition, research, and care for people with ME/CFS.

Key Achievements & Recent Initiatives

Key achievements include advocacy for improved recognition of ME/CFS and related conditions within national health and disability frameworks.

The organisation has also:

• Organised webinars and support groups for patients and families
• Published educational materials and newsletters
• Participated in national and European awareness campaigns

Support for Patients & Families

The association provides a range of support services, including:

• Support groups for patients and families
• Educational materials on ME/CFS, dysautonomia and fibromyalgia
• Guidance on navigating healthcare and social services
• A helpline offering advice and emotional support

Support for Healthcare Professionals

To improve understanding and care, the organisation:

• Provides educational materials and resources
• Organises workshops and seminars
• Offers guidance on diagnosis, management, and patient care