Associazione Malati di CFS
includes both patients as well as doctors and researchers in its membership. The
objectives are to restore dignity to the lives of those suffering from this
severe disease, completely neglected by the establishment institutions and
largely unknown, except by hearsay, by the medical establishment. The
organisation believes that the doctor should provide the first source of correct
and effective information for a patient with ME - who is forced to manage a
situation of severe physical pain, having to completely rearrange their pace of
life and work, and to enter into with this complex changing world.
Our first objective is to raise awareness of
the illness to medical, public and social institutionsin order that the
processes of diagnosis, the recognition of disability at work and psychological
support, not to mention the most important aspect, namely the implementation of
therapeutic attempts reasoned, should be streamlined and made more effective and
AMCFS also focuses on medical research in Italy and contribute to the
understanding and future treatment, physiopathogenetic mechanisms underlying the
syndrome. We have already proved a valuable support for scientific work, held in
the laboratory of Immunogenetics, University of Pavia, where also a "biological
bank" (i.e. material from blood samples from dozens of patients that can be used
for scientific research) was set up.
In the window below is the actual
web site of AMCFS.