In the UK
there has long been criticism of the policy of the Medical
Research Council (MRC) for funding only research which looks for
a psychosocial cause for myalgic encephalomyelitis.
The MRC do not
fund biomedical research - usually using a reason of a lack of
high-quality biomedical research proposals. This proposition by
the MRC is ridiculed by many. The MRC refused to fund the work
of Dr Jonathan Kerr of St. George's hospital, London, despite
the recognition by peers of the world-class research which Dr
Kerr was performing.
biomedical research, including gene research (which has shown
that in people with ME/CFS, there are more gene abnormalities
present than are found in cancer sufferers) has demonstrated
that the psychiatrists who hold such sway at the MRC are
comprehensively wrong about ME/CFS, nowhere could such criticism
be more appropriate than in relation to the PACE Trial.
Professor Malcolm Hooper,
Emeritus professor of medicinal chemistry at Sunderland
made a formal complaint to the Minister of State responsible for
the Medical Research Council.
A 442 page report, under the
title Magical Medicine: How to Make a Disease Disappear, has also
been produced detailing the failings of the Medical Research
Council and specifically the PACE trials.
addresses the background to the MRC “PACE” Trial on “CFS/ME”,
the biomedical evidence that disproves the assumptions of the
MRC trial Principal Investigators, the many extremely disturbing
issues surrounding the PACE Trial, and illustrations from the
Manuals used in the trial. The document
contains the background to consideration of and quotations from the Manuals for the Medical Research Council’s PACE Trial of behavioural interventions for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis together with evidence that such interventions are unlikely to be effective and may even be contra-indicated.
13 February 2010